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In: Cushing's, Diagnosis, Invisible Illness/Disability, Spoonie, Uncategorized

Or, “Sorry you’re sick, you’re just not sick enough.” I was having a relatively good day, and by that I mean I made it downstairs to the couch. That all changed when the mail came. It seems I have been denied for disability again. This is my second application and my first appeal. That’s three denials for those keeping score at home.* According to the Social Security Administration I am not sick enough to not have full-time employment. This may prove problematic because, as I mentioned above, my good days lately mean I can make it from my bed to my couch. Perhaps it isRead More →

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In: Invisible Illness/Disability

Yesterday, people from all over the United States (and even in countries across the world) got together to march for equality. Marchers were there for many different reasons, equal rights, inclusion, protecting and increasing civil liberties and more. I am no stranger to marches, having walked different progressive causes during the last few decades. But circumstances have changed and I am no longer able to physically pound my feet on the concrete and chant along with the masses to fight for our collective rights. But the activist in me will not be silenced. So I will fight.  For equality. For inclusion. For saving health care soRead More →